We enjoyed some family time in beaver at the Cabin. It was so nice, peaceful, cool, and very enjoyable. The kids loved it. T loved riding on the four-wheeler and playing with all the cousins and seeing all the animals. C also enjoyed the time with Cousins and just running and playing outside with out melting. Although she did not the guns going off when the boys were shooting.
9.18.2017 Time for an update on this drink stealing kid! Things have been ok at home. We have been super busy playing and working. And We have had a few small bumps. Ts kidney function started to go abnormal about a week after being home and never improved with adjusting of the meds. So now he is getting over night fluids through his port. Which have helped his kidney function a ton. These post BMT patients need like 2x the normal amount of water intake so this is probably a better way to judge how much water he is truly getting. We had our first follow up at PCH last friday. We were able to🛬 fly up and back which made the trip nice. But at the appointment we got some not so great news👎. Ts number dropped down to a range that they felt he needed a boost again, and since the cold bug came to our house and T started to show signs of a cold. At the time we thought we could do it at home and just have home health come do it but our insurance would not approve it. So luckily today we were able to have our Primary Care doctor put in the order and go to the peds floor in the RTU (rapid treatment unit) area here in st.g for a little bit and get that medication we needed. So now here is to hoping 🤞 for good numbers come Wednesday night's blood draw🙏. #Thasthebeatdancemoves #Tmantough2017 #toughliketanner #jolleyfam17
10.3.2017 Fall nights 😍😍😍 Things have been pretty quite around here. Which is the way we like it!! T numbers went back up after the medication and are holding strong. His cold is finally going away and he never stops playing. We are all healthy and Happy. We are loving this time of year and enjoying these moments in our beautiful backyard and home. #MissC #Tmantough2017#jolleyfam17
"JOY comes from and because of HIM!" -Russell M. Nelson.
These people are my JOY that HE has blessed me with and I am so Grateful!
A Day with Tanner Boy! Enjoy a good book,📖 play with Trucks🚒, and enjoy a Apple🍎... in one bit... almost!😉 T has been doing really well the last little bit. He is definitely a boy, he loves to eat, and has quite the personality. He is always making us smile and giggle, which makes him laugh even harder.#Tmantough2017 #jolleyfam17
Hey just thought we would do a quick update. T appointment went really well yesterday, so well that they want to start to taper him off his cyclosporine (the anti rejection medication) over the next 7 weeks. This is really exciting, this will be the tale of tales to know if he accepted his transplant. And how he does with it.
BUT one of his labs that takes longer to process came back a little low last night. So this morning we got a phone call telling us Ts Immunoglobulin was low...this is what helps fight bacterial and viral infections... so he needs an infusion of Immunoglobulin. Especially with cold and flu season upon us. So this afternoon we are hanging out on the Peds floor in st.g getting that infusion. #Tmantough2017 #toughliketanner #enjoyingthesnuggles
10.30.17 This little drugged up blanket mummys port line broke again! Lucky I was able to make some phone calls yesterday & talk with one my radiologists I work for here in st.g to do the procedure (taking out the line in his chest and putting in a PICC line in his arm). Everything went well. Now hopefully we can keep this line good for the next 4ish weeks to finish up fluids then get it taken out. #Tmantough #toughliketanner #jolleyfam17 #anotherdayatthehospital