Emotions

8.23.2017
As I lay here in bed and listen to T talk to himself (cause he is suppose to be asleep) I cant help but be extremely nervous and sad but also happy and excited at the same time. We are so close to day 100 that I am thinking way to much and causing myself to panic that we wont be going home in a couple of days. And how much that will break my heart if it doesnt happen. And then the total opposite what if we do come home and something so horribly wrong / T ends up with an infection and has to be readmitted again. It Also makes me think how much things have change over the last 3 months. Tanner has change and grown up so much! He is becoming more and more of a toddler daily and less and less of my baby boy. This also makes me excited because he is becoming so fun to play with. He is THE biggest tease! And always has us smiling. Especially when we are trying to be a little mad at him.

So with all these many, crazy emotions going around all I can do at this moment in time is enjoy this sweet voice, animal sounds, and talking coming from the little boy laying in the bed next to me and pray like crazy we can be at home in st.g very soon and everything will continue to go very smooth there!!!! 

Bumps

8.17.2017 Hanging out in the angel hope garden at primary's to kill time. These kiddos loved it and i am so happy to be with them again! Its crazy how much they have grown up this summer. I still can just picture C as a little 2 year old and a new big sister and T just a Baby! Time is going by so fast! It just needs to slow down for a bit #Tmantough2017 #MissC #jolleyfam17#BMT2017

8.17.17 A small, little, unplanned, urgent trip to the OR for T today. His central line(port) got a leak in one of the lumens and it needed to be replaced as soon as possible. (Its not common but also not uncommon that this leak happen) It would have been a huge infection risk if we didnt replace it. And also T is still need lots of future blood draws and to save him from being poked all the time and his age, we decided to kept for the next couple of months. We are still hoping to be able to go home to st.g next weekend. And The doctors did not seem to think this would hold us back. T did good, fasting and anesthesia is hard on him but he still was a champ!

Big Steps toward going home

8.10.2017 One of these pictures is not like the other?! Can you find it?? 😉💙

👋Goodbye feeding tube, Hello sweet Happy face!
#Tmantough2017 #jolleyfam17 #BMT2017 #day83postBMT

8.16.2017 Tman had a sedated echo/hearing test. And he was not very happy about it! These test are required as part of his 100 day Post BMT work up. He had the same thing done before we started. And he passed with flying colors! Ahh we are so excited to get home and its so close I can taste it. We are just praying with all our might that T will stay health between now and then. If all continues to go well the day we are looking at to come home is Aug 25!💙💚Number 1 Dad award🏆 goes to the guy in these pictures!! He has been with both kids up north for the past 8 days while I went home to work. He willing and without complaint took care of both kids, did C's hair, took T to his doctor appointments and his sedation today. T and C love him. They play so many games and did different things together. He is seriously one of their BEST FRIENDS! I am extremely greatful he is by my side through all of this and he is willing to do so much for all of us! 

Hello Day 80 (8.7.2017)

I cant not believe how fast this last little bit has gone by. Here we are 20 days from day 100 and I feel like I am going to blink and it will be here. T is doing AMAZING! I don't even know how else to say it. He is so happy, playful, full of energy and funny. There have been multiple nights we are all entertained by just what T is doing and he usually has us all laughing so hard we are rolling on the floor. It makes my heart so happy to see him like this. And His cute toddler personality is coming out and it so fun.

T numbers are looking great. His weight has maintained. And lastly he is taking all meds by mouth and does not need anti nausea medications any more.

We recently have had a chance to enjoy some family time together after a month of being apart.We spent the night at the ball park! Which is always a blast!

We also always love with G&G come to visit. 

I miss this boy so much right now! This was the last picture I got of him before I left to come and work. It is going to be a long week!