Day +23-35 - Last Week at the Hospital, Discharge Day 6.16.2017 (Day +28), Week 1 of Life out side the hospital

The last week at the hospital with filled with lots of playing, making all the nurses fall in love with T even more, due to him getting his personality back, and preparing to get discharged. He was finally allowed to leave his room as long as he kept his big green mask on. Tanner love it!! We played in the play room, ran the halls, kicked the ball, and did wagon rides(His absolute fav!) On one of the days we asked if we could step outside because it was not very windy and they said yes! So we went out and I thought he would be so excited! BUT it was actually the opposite. We had been inside and in the same room for 30+days (on chemo days you did not leave the room) and so I think it was something new again and that made him very nervous! He hung on tight and would not let me put him down. So we just went back inside and did more playing. Caroline came up on Thursday with G&G Jolley. And Tanner LOVED having time with them and having C to play with him.

On 6.16.2017 Was the day we were Discharged from the hospital to my sisters house. (We have to be near the hospital till day 100) We have made many friends at the hospital with Nurses and other Patients. For me, it was a bunch of mixed emotions. So excited for T to leave but also sad cause of the friendships we have made and I would have a little more stress keeping track of things. This was a busy day of learning how to do things for Tanner, getting our room cleaned out (yes we pretty much moved in) and then getting home health over to my sisters house and learn more. It has been a lot of work being at home. Tanner is on 11 different medications - some of these are done once a day others are twice a day! He still is getting his nutrition via TPN/Lipids through his IV and Tube feeding through his NG Tube. We are trying to get him on more Tube Feeds so we can stop the TPN/Lipids but T is just having a hard time with it.  T is loving being out of the Hospital and enjoying playing with Caroline and my sister's kids. I feel that is had been a huge blessing to be out and T is doing great with everything and has started to pick up food and eat small bits. (We Tried to get pics with all of our nurses but we just missed some cause they did not work again before we left. Sorry if we missed you)

We are still being closely followed by our doctors, and we have multiple appointments weekly. Tanner had his first outpatient appointment on Monday 6.19.2017 and the Team was super happy with everything and how his labs were doing! We thought for sure he was going to need another platelet Transfusion but his number actually went up on there own without help! HAPPY DAY! This means so much to everyone! The same goes for the second appointment on Thursday. So far we are still doing good and love playing outside of the hospital.