The Diagnosis

Tuesday May 3
As we waited for the MRI – We tried to help T not think about how hungry he was. We let him sleep as much as he wanted and let him play with Caroline. When it was time for him to go down to the MRI, Caroline and Jeff went down and played at the Ronald House. I took him down to the MRI and got him to sleep, and then I was sent back upstairs. I tried to take a nap, and did catch a small one. Then C and Jeff came back right around the same time T came back. It took him some time to come out of the sedation. He just wanted to stay asleep, which was a good thing because this is when the team of doctors, both medical and infectious disease, came into talk to us because they had some results that came back that held answers
for us. I was so nervous before they told us what it was because I was nervous it was lymphoma cancer.

5.3.2016 Today our Tanner boy has been diagnosed with an immune deficiency called Chronic Granulomatous Disease. In a nut shell, his white blood cells are not working well. They can find the bacteria making him sick but can't kill it. He is going to be very susceptible to a lot and we are going to have a change in lifestyle. But we are going to try our hardest to give him the best life possible. He will be on daily antibiotics to help his immune system but it will never go away unless we take the chance of a bone marrow transplant. So we hope and pray that we can get him better so we can go home and we hope we can keep him healthy. This is going to be a fight but we love our Tman and want the best for him. #Tmantough #toughliketanner #PCMC #jolleyfamily2016


Even though we had an answer for a lot of our questions. The Mass in the liver was still a rare finding and they wanted a closer look at it, and by closer I mean under a microscope. The surgeon was called to come and evaluate Tanner. He did and scheduled a surgery for Thursday. They were already booked for Wednesday.