Friday
and Saturday
Two
great days of recovery for sure. We all just sat around and enjoyed the time we
had together. Jeff was leaving to head back to work for the weekend on Friday
afternoon, so we got his things together and took him out to the airport. Friday
and Saturday consisted of lots of visitors for our T-man. He did really well after
everything he had been through.
Sunday
mother's day
Mother’s
day at PCMC; It wasn't anything big and spectacular but it was one I will
remember. T was doing amazing. He was responding to meds wonderfully and started
to get a little personality again. Smiling and talking up a storm. The best
however was his laugh and I was able to catch it on video which was even
better. I felt comfortable to leave for a few hours and go have dinner at my
sisters. It was great to get out of the hospital and have a home cooked meal. I
love my family and the support they showed for us. We still were not sure when
T would be coming home but we made arrangements for the next week, hoping we
wouldn’t have to use them. We knew that we needed to see and meet Dr. Chen who
would be our doctor for life with Tanner. When we were first diagnosed, we met
another doctor who works alongside Dr. Chen. I did not like him at all. He did
not have very good bedside manners and everything was black and white for him
with no grey. This made some of his comments very contradicting. After talking
with him, I was ready to meet Dr. Chen and get my many questions answered by
someone who works with a large number of CGD patients and who had better bed
side manners.
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