Thursday, May 11, 2017

BMT Day - 8

5.11.2017 Day -8 till transplant! Tanner boy got his line placed today and was admitted to the ICS floor. We have waited for this day for 1 year now (T was diagnosed on 5.3.2016 with CGD)
It's has been a Whirlwind of emotions this past year. He would do great and then he would have his moments and not do so great. Then the many thoughts of are we doing the right thing, or doing the wrong thing would always play into our minds. We know that this is what he has to do to get his disease out of him. And We extremely grateful for modern medicine and that my son disease has a cure. It's just hard to prepare yourself to watch your 17 month old son become so sick.
We are so grateful for our team of doctors and nurse and we are excited to get to know them better as we get tanner better than he ever has been in his life.
Words cannot express how grateful we are for the many prayers and the much-needed support we have received from our many family members and friends. We are extremely grateful for Tanner's bone marrow donor and the wonderful gift they are giving our son.
We start chemo bright and early tomorrow morning at 6 a.m. and will continue chemo for four more days. We'll have three days of rest and transplant day will be on May 19th.
XOXO

****TO TANNER: My sweet boy, Today you yet underwent another surgery. Hopefully, this is your last for Disease and you life, but your a boy so probably not! You have the hardest time coming out of it. You just cried and cried and just wanted to sleep. We finally let you get back to sleep and did much better later. You didn't have much pain, or at least that we could tell. You still got down and played for a little bit. We did give you pain meds just in case. We glad we are here and we are ready to get you better. LOVE YOU****

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